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November 2007 Feingold Email Newsletter
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Dear Feingold Association Members & Friends,

    Feingold News:

    Food & Fund Raising News:

    Science News:

  • Holiday reminder

    Watch for your new and updated 2008 Fast Food Guide which will be sent out with the December/January Pure Facts Newsletter. If your Guide is more than a year old, and you have not renewed your Pure Facts subscription, now is a good time to do so.

    If you are a member needing extra Fast Food Guides, you can purchase them in Member Services at the Replacement Materials or Extra Materials order form.

    Note: This publication is for the experienced Feingolder. New members should wait until they have seen a good response to the diet so that they will know if there is a reaction to restaurant food. In restaurants, suppliers change frequently, and the research done on the restaurant foods cannot attain the same standards as that done for the Foodlist.

    Marion at would like to be contacted by anyone wishing to form a support group near Largo, Maryland.

    AllerEnergy and Allergy Grocers (Miss Robens) have teamed up to create Marshmallow Treets™ (like Marshmallow Peeps but minus the synthetic additives), bags of marshmallows, and soon they will have a marshmallow crème!

    They will be sold under the AllerEnergy Brand

    All these products will be free of all major allergens, gluten, corn, artificial colors or flavors and more. They will be made in a dedicated environment where none of these are used, to prevent cross-contamination. The first Marshmallow Treets™ will be in the shapes & colors of white snowmen, green Christmas trees, and blue stars with more shapes coming for each holiday and season. They are acceptable Stage One!

    They will appear soon on the following web sites, but since this is such a new product, call their phone numbers below for details:   800-891-0083   513-478-4466

    The Feingold holiday fund raiser is underway. Once again this year we will be offering baskets filled with natural, Feingold-acceptable treats (both Stage One and Two items).

    For each $50 donation, FAUS will send a gift-wrapped basket to you or the person you select. You may enclose a personalized gift message, as well.

    To order, go to our web site or call our New York office at 1-800-321-3287 (USA) or 1-631-369-9340. We apologize, but we can only send baskets to addresses in the United States.

    When I was at the Great Plains Laboratory conference in Canada, I met one of our members, Lisa Lundy, and a clever delightful young artist who turned out to be her son. Having become an expert on the day-to-day dealing with allergic children and the rotation diet, Lisa has written a cookbook with over 225 recipes free of wheat, gluten, milk, casein, lactose, egg, peanuts, tree nuts, and coconut.

    The soft-back cookbook also has over 100 pages of information about how to do special diets for allergy and celiac disease, how to manage a rotation diet without losing your mind, how to find unusual ingredients or special flours, and even how to save money. Reading her book feels like she is right there talking to you, and I found it fascinating even though my family doesn't actually need special diets beyond Feingold.

    The book name needs its own paragraph: The Super Allergy Girl Gluten-Free, Casein-Free, Nut-Free Allergy & Celiac Cookbook From A Mother Who Knows.

    You can buy it at

    [ ] ... AND COOL CARDS
    Author Lisa has also surprised us with sets of original greeting cards suitable for any occasion. At $1 per card/envelope with no shipping costs, you can hardly beat the price.

    At the same web site,, you will find them a good value for holiday, greeting, or gift cards. They are blank inside, so you can use at any time for a "thinking of you" card, a "get well" card, or whatever you may need.

    Choose a set of 12 cards/envelopes in the style of your choice - hearts, geometric, antique postcards, blue flowers, or word power - for $12 or a Sampler set of 20 different cards for $20. For any purchase of $20 or over, there is no shipping cost ($5 extra in Canada). And for every package of cards purchased between November 18 and December 20, Lisa will donate $5 to the Feingold Association.

    Our web-watching volunteers keep sending us articles relating to the Lancet article published September 6, showing that even children with no diagnosis of ADHD move several percents toward the hyperactive and inattentive end of the scale upon exposure to a moderate amount of food additives and preservative.

    Jane Hersey, our National Director, has been invited for many radio interviews about the study, both national and local.

    The New York State Assembly Standing Committee on Mental Health, Mental Retardation, and Developmental Disabilities, held a hearing on October 30, 2007. They invited interested parties to testify about the connection between additives and hyperactivity. We were represented by three volunteers, covering the topics of inadequate labeling, sufficiency of research, and what to do about it. We recommended that New York look again at the Schoenthaler study documenting a four-year change in the New York City school food program. We recommended removing certain additives from the lunch served to children; a program of educating the children to make good food choices will spread to the families and increase the pressure on manufacturers to improve their products. Two other speakers testified on behalf of the scientific community; they claimed that perhaps scientists should keep an open mind, and that New York should give them money for more research on the subject.

    [ ] RED #3 .... STILL HERE ... SIGHHHH
    Written in 1985 ... but still valid ... is the history of the effort to ban Red #3. The title notes " after 25 years, still no decision." I suppose we could write it again and say "48 years, and it's still here." See the New York Times article.

    For those who like to really get their teeth into some information, here is a long but good history of food dyes and the surrounding controversy.

    Several studies have been reporting a possible association of celiac disease with psychiatric disorders such as ADHD. In Italy, researchers studied 132 patients aged 3 to 57 who were diagnosed with celiac disease. Using the Italian version of the Conners Scale, their ADHD symptoms were assessed before and again six months after they began a gluten-free diet. Not only did they find that ADHD is very common among the patients diagnosed with celiac disease, but also that the gluten-free diet improved the ADHD symptoms as well as the celiac symptoms.

    Although people usually think of celiac disease as causing intestinal distress, it can also occur "silently" - without symptoms. Diagnosis has usually been made by endoscopic examination of the intestinal membrane. Since diagnosis can now be done using a blood test rather than the more invasive endoscopy, the authors conclude that all patients with ADHD-like symptoms should be screened for celiac disease using blood screening tests.

    When a child on the Feingold Program does not improve significantly, one of the next steps is often to remove wheat or gluten/casein from their diet. How many of these children actually have unrecognized celiac disease and would improve further by use of a gluten-free diet is unknown. If you have such a child, consider discussing with your doctor the possibility of ruling out "silent" celiac disease.

    A preliminary investigation of ADHD symptoms in persons with celiac disease. - Niederhofer H, Pittschieler K. Journal of Attention Disorders, 2006 Nov;10(2):200-4

    Pheochromocytoma is a rare condition, a brain tumor that over-produces the neurotransmitters norepinephrine and epinephrine. Symptoms include hypertension (high blood pressure), headaches, and nausea. It was not well recognized previously, that some of their other symptoms appear to be those of ADHD, leading to misdiagnosis, especially since not all children with pheochromocytoma have high blood pressure when first seen by the physician. Because of their inability to concentrate, hyperactivity, and poor school performance, the tumor may be unrecognized, and the children may be put on stimulant medication.

    Doctors at the Marshfield Clinic in Marshfield, WI, recommend that children who develop ADHD-like symptoms at an older age or who have other symptoms such as headaches and hypertension should undergo evaluation to rule out this sort of physical disorder. The authors say that in the case of the two children described, all symptoms resolved after surgery to remove the tumor.

    Two cases of pheochromocytoma presenting with ADHD (attention deficit hyperactivity disorder)-like symptoms. - Haws R, Joseph M, Adelman R. Pediatric Nephrology 2007 Nov 1; [Epub ahead of print]

    At the University of Bergen, the Department of Pediatrics has recently examined children referred to them by health-care and social workers workers who suspected they had been exposed before birth to street drugs or alcohol. 50 of them were diagnosed with Fetal Alcohol Syndrome, and 47 were diagnosed with prenatal street drug exposure. Almost all the children in both groups met the criteria of ADHD.

    The authors concluded, "Children exposed to drugs are somatic healthy but have increased risk of neuroimpairments such as ADHD."

    Although as far as we know, no research has been done on the use of dietary intervention for such children, we have had reports over the years that the ADHD symptoms of children like this do improve with the use of the Feingold Program. If you are aware of such a child, please encourage the family to give the child as "clean" a diet and environment as possible, free from petrochemical food additives and fragrances. Although the Feingold diet alone may not be enough to undo the damage done, it may make it possible for the child to benefit from other therapies better and with the least possible amount of medications.

    Complexity of foetal alcohol or drug neuroimpairments. - Elgen I, Bruaroy S, Laegreid LM. Acta Paediatrica, 2007 Oct 30; [Epub ahead of print]

    As you prepare for the end-of-year holidays, don't forget to buy turkeys without "basting" or injected chemical "broth." For recipes and ideas, check out previous November and December issues at our email newsletter archives at

    Wishing you safe and delicious holidays,